Friday, 9 August 2019

A Mental Health Nightmare

(Trigger Warning: Self Harm, Suicide, Trauma, and Medication)

This is a follow on from my previous blog post


On Wednesday, I had an assessment with a nurse from CMHT. I was referred for this by my counsellor at my last session. Primary care had decided that, because of my urges to self harm, & my strong suicidal feelings, I wasn't stable enough for them.


The CMHT assessment went worse than I expected. I was assessed by a very condescending, judgmental nurse (who turned out to be the useless nurse prescriber I saw last year, who kept me on Sertraline even though it'd stopped working). She got me to fill in a very short questionnaire (something to do with how often I feel useless, demotivated etc) then told me she'd only ask me a few questions because CMHT had seen me a few times before & they knew my history.


First of all, she wanted me to tell her how I'd been feeling. I told her that primary care had sent me to CMHT because they felt that I was too unstable for them. She seemed disbelieving about that and had this smug look on her face (not a great start). I can't remember exactly what she asked me, but it wasn't much. It was mainly me telling her how I was feeling, and my worries. I was having urges to self harm badly, flashbacks about my traumas (Which I reminded her of), graphic mental images. I was even having suicidal thoughts, although I didn't think I'd carry them out because I feel stuck having my parents and Billie. They were my protective factors but without them I would definitely have attempted suicide. What I would definitely be doing though is self harming/overdosing. She still didn't seem to believe me, and asked what I wanted from CMHT. I said I felt I needed a CPN to monitor me. She said they don't do that now. I said I needed a meds review because I'm on the maximum dose of Sertraline and it seems to have stopped working. She said it was probably helping a bit so I should stay on it regardless. I said I may as well stop them, and she insisted I didn't.


I also asked whether an assessment for PTSD would lead to more help & she said no and I probably had it anyway because I had counselling for trauma and I'd been told to refer myself for Trauma Focused CBT. So I guess I have a sort of diagnosis now. I then reminded her of how much I was struggling, that I was at crisis point & I would definitely harm myself when I get home. She didn't seem to believe me and she said that I just wasn't ill enough for any help from them. She repeated it was all short term anyway, and mental health services had changed.


She then started talking as if it was a job interview. She asked me where I saw myself in 5 years. I was in no state to think about that, so I just said I don't know, I felt like I wasn't getting any better so I wouldn't know how I'd cope on my own, but I hoped I'd have moved out by then. She seemed pleased about that. She asked me about my hobbies (I talked about blogging and gaming), whether I went to any classes (I said about Slimming World), whether I worked/was intending to. I said I wanted to do something online but there wasn't much regular work online that I could do. She said that all I seem to do is go online, talk to friends and not much else. I found her very judgmental and she completely got the wrong impression of me.


There wasn't much else after that and I was crying through pretty much the entire assessment. She asked me what my plans were for that day. I scoffed and said I wanted to harm myself & that was all I planned to do. Even though I was clearly a risk to myself, she dismissed it. She'd even said at the start that she would have to tell a colleague if I was at risk! I have a feeling she didn't though. So I came out of the assessment crying and desperate to harm myself. I felt out of control! I dashed to the toilet and looked around to see if I could find anything to hurt myself with (preferably something sharp). I couldn't find anything & Dad would be there any minute, so I had to gather myself together then go out of the toilet. I told Dad what had happened and he was furious at her.


When we got home, I was in a world of my own. All I could think about was harming myself, and I spent about an hour in silence, planning what to do. I opted for overdosing. I took my chance when Mum went to the bathroom. I overdosed on Stemetil (Prochlorperazine). I only stopped when Mum came in. I told her what I'd done & she was very worried. She asked me how I was feeling, then it was only an hour or so after that I had my urgent GP appointment (mum had booked it when I told her about the assessment).


The GP appointment went much better than the CMHT assessment. He took me seriously, wrote down what I told him, and asked how I was feeling (drowsy, dizzy, nauseous). Then he faced me, took a breath, & said I needed to go to the hospital, get checked over and see Psych Liaison team. He said I was "high risk" and should get to the hospital ASAP. He also wanted to see me the next day for a follow up. Soon after that, I was at my local hospital's A&E department. I explained to the receptionist what I'd done & how I felt and I didn't have to wait long to see the triage nurse.


She was very understanding but she misunderstood when I talked about my bullying trauma shaping my personality. She thought I meant my body and started talking about weight loss, checking thyroid. That confused me for a bit. Having thin privilege, I'd never had a healthcare professional mention my weight before. Anyway, she checked on her system what needed to happen with a Prochlorperazine overdose. She booked me in for blood tests and an ECG. I had the ECG which was fine, then I was brought through to cubicles by a really nice doctor. She did my bloods & asked me questions about physical health, mental health etc. I really felt listened to, and she made sure I wanted to see Psych Liaison team. She then got a colleague to do my blood sugar (4.4, so low end of normal) and said while I wait for blood test results to come back, I should have something to eat and drink to get blood sugar up a bit. It would take an hour for results to come back.


Then came a lot of waiting. My blood results were "not worrying" but indicated I was dehydrated, so the doctor told me to get some water. She asked how I was feeling. I said I had a banging headache, and was very drowsy and dizzy. She then said she had called Psych Liaison team and they aimed to see me within the hour, but couldn't guarantee it. I was sent back to the waiting area. I got some water, went to the loo and waited. It was almost 2 hours before I was seen. The person I was due to see had finished his shift so had to spend time updating the person I was going to see instead. I actually saw two people at the same time. I think one was a psychiatrist & the other, a psychologist. They knew why I was there and had contacted my CMHT again. All they could do was advise me, as CMHT still wouldn't take me on. Apparently, even though Primary Care said I wasn't stable enough, CMHT said I was. They couldn't offer me more support but they at least explained things in a kinder way, took me seriously, and made sure I had support at home. The psychologist (?) also gave me information about classes I could join, mental health organisations etc. They also told me to see my GP about my meds.


Apparently, if the GP wasn't comfortable changing my medication, they could refer me directly to a psychiatrist! So other than that, I was to keep myself safe and distracted, with help of parents, friends, my cat, and crisis team until I have my Trauma Focused CBT. I eventually got home (after a trip to the chip shop, I was starving!) and was absolutely exhausted. It was about 10pm (I had first got to A&E just before 4pm). After food, I took a Diazepam then slept.


So since then I've been feeling like hurting myself but I don't think I'll do it, so I feel safer. I've seen the GP again and he's changed my Sertraline to Citalopram, and added a week's worth of Diazepam. He also got me to book an appointment for 2 weeks time, so he can monitor my moods, side effects etc


I feel like, even though I couldn't get more practical support from CMHT etc, at least I can refer for Trauma Focused CBT, I have a sort of diagnosis of PTSD, my meds have been reviewed, and my GP is monitoring me. So it's turned out ok, and I'm hoping I will improve. I will refer myself for Trauma Focused CBT next week, as it will be about 10 weeks before the sessions start. In the meantime, I have to be more open and honest with my loved ones, and let them look after me and keep me safe. The other day feels like a blur, a really bad dream even. I guess I'm still recovering but at least I'm in a better place now.

Wednesday, 31 July 2019

My last Counselling session, and a referral to CMHT :Counselling Session 11

(Trigger Warning: Self Harm details, Suicide, and Abortion)


Mood Swings and Intrusive Thoughts:

A couple of days before my last counselling session, I was slightly hyper, overconfident, in a confrontational mood, and impulsive. I did not have much money to be impulsive with, so I just bought a jacket for my mum. Days before that, I had spent money online, buying lots of makeup and hair products. This hyper feeling only lasted a couple of hours, and then I became very anxious and paranoid; particularly about social media. I'd posted my response to an article about disabled people protesting and being reported to the Department for Work and Pensions (DWP) simply for protesting. I thought this malicious reporting was disgusting and I criticised the police who had done it. I fully expected an angry response from police officers/people who supported the police unconditionally, but thankfully I didn't get any. My Anxiety didn't subside much though, and I soon found myself in the deep pit of Depression. I was also very distressed, as I was experiencing graphic triggering mental images (mostly of abortion, and self harm) as well as intrusive thoughts and strong urges to self harm. I was supposed to call the Access team for some guidance, but I was too distressed and nervous, so I opted to email them instead.

The response I got the next day was very cold and dismissive. They basically told me I was right to say calling would result in a quicker response, and that I should do that instead. There was no sympathy for my situation. If anything, it nearly put me off calling, as I expected the call handler to be just as cold and dismissive.

By the end of the day, I was desperate to talk to someone though. I brought up the number on my phone and pressed "call" before I could talk myself out of it (again) due to thinking my situation wasn't urgent enough. The call handler was lovely though. They had a really calming voice, listened to me, and took me seriously. They also gave some helpful advice.

Counselling:

Skipping forward to my counselling session,  I was still very distressed and depressed. As I explained to my counsellor, how I'd been feeling, I became more distressed, confused, and tearful. There were some things I hadn't realised about myself, that had now come to the forefront as I exposed myself to triggering conversations through counselling. The problem was, I needed support inbetween counselling sessions, as I had talked through my trauma in the session, and when it had ended, I was left to deal with the result of opening up. That's not to say counselling has caused my crisis (is it a crisis?) but it has brought some difficult things to the front of my mind; which has then led to a crisis.

I spoke to her about my intrusive thoughts, the mental images, the suicidal thoughts and urges to self harm (specifically cutting my arms and legs in the shower). This took over the session, as it was so urgent that I get help soon. My counsellor was very concerned and wanted to know how likely I was to harm myself.

She told me that to deal with the trauma and learn practical skills for coping, I needed to have trauma specific CBT. She then said that she didn't feel I was stable enough to commit to it at the moment though. Primary Care didn't have the resources to help people who are at risk of suicide or self harm, or the very complex issues that are causing me to need help straight away. She said that if I wanted, she would call the Access team so they could step me up to secondary care

She also asked what I felt I needed, if I were to be referred to Secondary Care (aka Community Mental Health Team). I took a minute to gather myself together, then told her I felt I needed a medication review, because I felt the Sertraline wasn't working anymore, and I shouldn't be in this state while on the highest dose. I also needed to be assessed for PTSD, and have a CPN to monitor my progress.

She asked me how I felt they could help me become more stable (other than the meds review) and I started crying as I said I wasn't sure, but I didn't want to keep struggling with the trauma I've experienced. I didn't want to feel this way anymore and I'm no expert so I don't have all the answers for how to help myself. I felt like I needed to have all the answers though, otherwise CMHT wouldn't know how to help me. I told my counsellor about the last time I was assessed by them. I did need their help though, so would like her to ring the Access team for me. She asked me to tell her what I wanted them to know. I said that I wanted her to tell them that I was having strong urges to self harm, I was having suicidal thoughts as well as graphic intrusive thoughts and mental images. I also was very depressed and distressed, and needed help very soon.

The session had come to a close at that point, and my counsellor confirmed she would ring Access team and tell them what I'd told her. I'd stopped crying by that point, and was checking my eyes weren't too red. I was very grateful to her for all her help, and I was very apologetic about how I'd behaved (I was worried that I had been rude and in her face. It turned out I hadn't though).

What Happened Next:

The next day, I expected a call from the Access team, but it never came. I rang them and explained everything. They checked my notes on the system, and said that I'd been stepped up to secondary care/CMHT straight away, and an appointment had been booked for me for 7th August.

I will blog about my appointment with CMHT soon. Please keep your fingers' crossed that they can offer me some help!


Resources:

Police force admits agreement to share information about protesters with DWP: https://www.disabilitynewsservice.com/police-force-admits-agreement-to-share-information-about-protesters-with-dwp/

Dealing with intrusive thoughts: https://www.mind.org.uk/information-support/your-stories/dealing-with-intrusive-thoughts/#.XUGQsehKiM8

Treatments for PTSD: https://www.mind.org.uk/information-support/types-of-mental-health-problems/post-traumatic-stress-disorder-ptsd/treatments-for-ptsd/#.XUGRW-hKiM8

Community Mental Health Team: https://www.rethink.org/advice-and-information/living-with-mental-illness/treatment-and-support/community-mental-health-team-cmht/?gclid=CjwKCAjw-ITqBRB7EiwAZ1c5U6Ry5KJLjfr8k89GV4DpHT1_3NVTwxF-_nqPRrzqeF1QNV6cVwo2PRoCqIQQAvD_BwE

Post Traumatic Stress Disorder: https://www.nhs.uk/conditions/post-traumatic-stress-disorder-ptsd/

Mental health professionals: https://www.netdoctor.co.uk/conditions/depression/a638/mental-health-professionals/


Friday, 26 July 2019

Lack of Resources: Counselling Session 10

(Trigger Warning: Mention of trauma, self harm, overdosing, and suicide)

I had been experiencing a lot of emotional numbness and the need to avoid my feelings; leading up to this counselling session. Because of that, I wasn't sure what to talk about. My counsellor did ask me to embellish on the numb feelings and avoidance though and we found I was doing this to protect myself from intense distress and depression. There'd been some triggering storylines on television, and instead of panicking, I found myself dissociating in order to protect myself from the horrible feelings of being triggered.

My mum has had to fill in a work capability questionnaire too, and helping her do this, seeing her so anxious and depressed, has really rubbed off on me. It also took me back to the times I've had to fill in these forms; how much I've struggled emotionally, remembering back to that awful first face to face assessment. I never want to go through that again. My mental health worsened partly because of that assessment, and I haven't significantly improved since. As for emotions rubbing off on me, I told my counsellor that this happened in many situations, and I found I even got affected by atmospheres in a room. If it's a depressing atmosphere, I feel depressed. If it's an anxious atmosphere, I feel panicky, and so on. If a person is upset, they don't have to be showing it obviously, or tell me. I can sense how they feel, and it makes me feel the same. I suppose I'm an empath, in that sense. I've always been told I am both sympathetic and empathetic to people's situations.

We talked about how my emotions tend to be very intense. Even being numb can feel intense.  I find it hard to "catch" myself before my emotions have gone from 0-100, so balance is something I would love to strive for.

We also talked about the dissociation I experienced. I explained how it felt as if I was looking at the world through a thick glass window, or an out of body experience; where I'm watching myself do and say things. I'm not really there, I'm just a body without the human element to it. I also feel very spaced out. I find it hard to talk about things fluently. I can't concentrate properly and nothing feels real. When I'm like this, I worry about what I will say or do as I'm not really *there* to face the consequences.

I started experiencing dissociation when I was bullied at school. It was a way of protecting myself and escaping from the bullies' cruel words, the abandonment I felt when left out, the lack of support and understanding from my elders. I was avoiding my feelings, and it took a while to ground myself.

We then moved on to what would happen after the last session (session 11) of counselling. We'd decided that, although counselling had helped me to talk freely about what I needed to, and understand the problems I have with trauma, it was not a specific therapy for trauma. What I needed was something trauma focused. The counsellor said that the Wellbeing (Primary Care) Team only offer trauma focused CBT. I considered this, but wanted to know if secondary care would offer anything. She said she'd spoken to her manager, who had decided I'm not unwell enough for secondary care, and to be honest, they just didn't have the resources to offer the long term help I needed.

So it was CBT or nothing.

I told my counsellor that I had set up a fundraising page to try and raise enough money to fund a few private sessions of trauma therapy or EMDR . This would help me to get specialised help, but it cost around £80 for an hour's session. Unfortunately, the fundraiser was a flop. I had a grand total of one donation.

I decided to say yes to the CBT. It was my only choice. My counsellor had been under the impression that she could refer me straight on to be placed on the waiting list for CBT, but unfortunately it doesn't work like that. Once counselling has finished, I need to self refer, go through the telephone assessment, and then be placed on the (8-10 week I think?) waiting list. It's not ideal, but it really is that or no help at all.

I told my counsellor about how, although I was grateful for the help I had got, I was frustrated about the lack of choice of therapies in my local mental health team. I knew it wasn't the staff's fault, but it didn't stop me feeling as if I wasn't really getting the right help for me. I also felt abandoned by secondary care. Again, I was grateful for the help they had given me (a referral to a psychiatrist, and a couple of sessions with them, as well as a CPN, and support worker who gave me some very short rounds of self compassion therapy and emotional regulation therapy). The last time I was referred to them though, I was very unwell, self harming, overdosing, and even hallucinating, they would not help me. I was assessed then discharged; being advised to get CBT with the wellness team. Usually, they would tell me to call if I ever needed them. This time, they didn't. It could've been a mistake on their part, but my brain told me that they didn't want me to call them ever again. I felt as if they'd washed their hands of me because I didn't deserve the help, and I would have to have done something drastic if I ever was to get their help again.

I said to my counsellor that, when it came to urgent help, mental suffering was not seen as bad enough for assistance. It had to be that the mental suffering had led to physical consequences (such as self harm/overdosing/a suicide attempt) before anything would be done. Even then, help wasn't guaranteed. I suppose I did blame some of the staff for not taking me seriously enough, but it was also to do with lack of funding from the government, leading to lack of resources, and therefore lack of help and choice of care. It's such a shame. No one should be left to suffer in silence.

I have one more session left, then that's it for counselling. I told my counsellor at the end of the session, that I would miss her a lot, and I felt that we had a great therapeutic relationship. I think she appreciated that; she was grateful anyway.

So my plan now is to wait a few days after my last counselling session, then ring the mental health team to self refer for CBT. I'm hoping the therapist I see knows a lot about trauma, so that they understand the things I tell them. I'm keeping an open mind about going through CBT yet again (5th time now?) so I'll have to wait and see how it goes. I will of course blog (and maybe also vlog) about my sessions. In the meantime, "just keep swimming!"



Resources

My ESA Tribunal Experience: https://www.amysmysteryillness.co.uk/2014/03/my-esa-tribunal-experience.html

13 Signs That You're an Empath: https://highlysensitiverefuge.com/empath-signs/

Grounding techniques: https://www.mind.org.uk/information-support/types-of-mental-health-problems/dissociation-and-dissociative-disorders/self-care/#TryGroundingTechniques

Dissociation and Dissociative Disorders: https://www.mind.org.uk/information-support/types-of-mental-health-problems/dissociation-and-dissociative-disorders/#.XTtgYuhKiM8

Cognitive Behavioural Therapy https://www.mind.org.uk/information-support/drugs-and-treatments/cognitive-behavioural-therapy-cbt/#.XTtg2ehKiM8

My Ko-Fi fundraising page: https://ko-fi.com/W7W0XG96?

Eye Movement Desensitisation Reprocessing: https://www.ptsduk.org/treatment-options/eye-movement-desensitisation-reprocessing-emdr/?gclid=Cj0KCQjwyerpBRD9ARIsAH-ITn8wTsjUzlHWODMZO6to9j5467XJogbBYhhHsDZpozCQXg0x83b4DAwaAvmdEALw_wcB





Tuesday, 16 July 2019

What's Next? : Counselling Session 9

(TW: Abortion, abuse, and bullying mentions)

I'd been very emotional; leading up to this session. I'm not sure what set it off, but everything had felt so intense. I also wanted to control situations more, and had more flashbacks. It didn't help that I'd had flare ups of my physical conditions; especially the pains. TV shows had been full of abortion story-lines, and coupled with being on my period, I really wasn't having a great time.

I don't think I've been very open about how I've been feeling to be honest. This is a sign that I'm isolating; not something I always realise for myself. I do hate feeling like this though.

I let everything out at my counselling appointment. Thankfully, I don't really feel judged by my counsellor and I feel like I can tell her anything.

We went through how things linked to other things, and how my past had such an impact on how I react to things now. We also discussed the main things affecting my mental health at the moment. We decided that my main issues were my trauma (from bullying, the abortion, and the abusive relationship), as well as my need for control, and my anxiety.

In the previous session, we'd created a time-line to determine what led to my need for control, and what the consequences were/could be. Right at the start was the bullying; where my belief that people would be kind to me if I was kind to them, was challenged. Because they acted in a way I didn't expect, and they were horrible to me, I wondered if I was a horrible person and I questioned whether I deserved to feel good. This then led onto me not trusting people or situations, and therefore wanting to read minds, know what the future would bring/what would happen next, as well as feeling bad about myself. This led onto the need to control.

The consequences of controlling or wanting control over situations or people, was categorised into Pros and Cons. Pros were gaining reassurance and certainty, feeling strong, and knowing how to respond. The cons were the risk to relationships, feeling less reassured if trying to control didn't work, lack of nice surprises and spontaneity, and the fear that I may manipulate others.

This session, we did a similar time-line, but with anxiety in the middle. Right at the start, we established my true persona was that of a leader and decision maker. Being bullied changed my role from leader to follower however. As the bullying had made me a follower who was quite sensitive, I expected certain people to take care giving roles. When I had my abortion, I expected the nurses to be compassionate and supportive. After all, I was making a potentially upsetting decision and going through something quite big; so the least I could expect was support and understanding. When I didn't get it though, I felt very vulnerable. Similarly with the abusive relationship. I expected to be looked after, not taken advantage of and abused.

These made me feel misled, and again I felt people weren't acting in ways that I expected them too; which made it hard for me to trust others. A lack of trust in society/the world made me feel insecure and scared of what the future would bring, which then led to the anxiety.

From anxiety came pros and cons. The pros were that my need for survival was achieved by my anxiety. This would release adrenaline, which made me prepared for any perceived threats. The cons were much more however. These were the inability to relax, finding it hard to concentrate, not trusting people or situations, judgement being clouded. not giving people a chance, holding myself back, and not being as sociable. This also led to potentially affecting relationships, feeding others' anxiety (especially if I socialise with them less), being stuck, not moving on, not grabbing as many opportunities, not meeting people as much, and therefore a lesser quality of life.

We then moved onto an overview of our sessions, and what I needed help with most right now. For me, I found the trauma bothered me most, and was holding me back. I said I needed some sort of trauma therapy or EMDR. My counsellor said I definitely needed something more long term, but unfortunately all that Primary Care could offer was CBT. I was reluctant to agree to this, as I'd not had great experiences with it in the past. I've always found it far too rigid and simplistic for the problems I have. I asked whether Secondary Care offered anything, as my problems were complex and they were supposed to help with complex mental health problems. She told me that it was unlikely I'd have anything long term with them, but she would have a word and see if they could offer anything. She said she'd be happy to step me up to that level if they could help. If they couldn't though, would I consider the CBT? I reluctantly said yes. I would rather have that than no help at all.

We only have 2 sessions left, so we booked those in for me, and my counsellor said we'd make a plan for what help I could get next. She checked I was OK with finishing in 2 sessions' time too. I expected it, so I was OK. I just hope that something will help me address the trauma I've been through!

Although my Ko-Fi fundraiser has been a complete flop (only raising £12 from one lovely donor) I'm still keeping it up if anyone can help me to afford private trauma therapy. Please click this link to get to my page, and share and/or donate. I would really appreciate it! In return, maybe I could write something on a topic you would like to read about?

Tuesday, 2 July 2019

Connecting the Dots: Counselling Session 8

(TW: Abortion discussion)

This session, I told my counsellor how I'd been feeling very overwhelmed with everything. She asked me to embellish, and I said how a lot of it was due to triggering news and discussions, as well as bad political news items. I read up on this because I'm interested in it, but it does get me down; especially when it seems that a lot is going wrong in the country or the world. I've also found it hard to reply to private messages from friends, due to being so overwhelmed. As much as I love talking to friends, it can be a draining process when there's lots of messages, and/or long messages. I think about what I need to do in order to reply. It includes:


  1. Reading the message
  2. Processing each point made
  3. Thinking about what to reply with
  4. Writing it out, while re reading parts of the message received so I don't miss anything out
  5. Reading through my reply to make sure I've written it properly and the tone is alright
  6. Sending the message
  7. Waiting for a reply
  8. Go back to step 1 and repeat
Eventually, I have to distract myself from messages and reply again in a day or two (or a week or two if I forget!). I feel bad for ignoring my friends, but I literally don't have the energy for long conversations anymore. 

As for the triggering news, a lot of it was about abortion, and a certain politician's views on it. I just can't seem to cope with other people's opinions on this topic. Whenever there's a negative view towards it, I take it so personally, and it brings me right back to my own traumatic experience. It took a while for me to realise this was a trauma for me, and I haven't processed what happened, and my feelings about it properly. The way I was treated was in a cold, uncaring, judgmental way. I didn't feel supported by the medical professionals I was under the care of. I was not offered the counselling I so desperately needed after it was over. I just had to get on with life at university as if nothing had happened. I remember feeling so numb sometimes, and so low other times. I would spend time with my then partner (the one who turned out to be abusive) in silence. I know it affected him too, even though he wasn't the father. Nowadays, discussion (or even mention) of abortion makes me panic, feel scared (as if I'm in danger), very low, guilty, I have graphic mental images of the abortion itself, I can even feel the physical pain I was in. I think I do actually have flashbacks now.

I certainly wasn't as fluent in talking about the abortion face to face, as I am, writing it now. I can sort of disconnect when I'm the one talking about it. It's almost as if I'm talking about a character in a book; not myself. Face to face, talking it through with another person, and hearing their views on my experiences, is different though. As I tried my best to talk through what happened and how I felt, as well as the feelings and mental images I have when experiencing flashbacks, I began to feel breathless and panicky. I also became dizzy and struggled to pronounce words. Every time I said a long word, I kept repeating it, and saying to the counsellor that I wasn't sure if I'd pronounced it properly. It was all very weird. I felt very weird, and it took a little while for me to get to a point where I could talk about other things.

The bad news around the country and the world fed into my low mood. I felt as if everything was going wrong. I catastrophised things and felt hopeless about it all. I wanted to help people, but with situations in the country being so bad, I didn't know if I would be able to do it. 

After listening to all of this, my counsellor said we should do an exercise. She handed me a sheet of paper, and asked me to write "Low Mood" in the middle of it. I was then asked to draw a spider diagram; writing the things that related to this feeling, or happened to lead to it etc. The things I wrote included the following:

  • Abortion - Not processing what happened properly. Feeling trauma, panic, shame, guilt and loss. Complex thoughts around the foetus; thanks to pro life/anti choice opinions. Worrying about this being a loss, and I might never have a chance to have a baby again
  • Low self esteem 
  • Bullying
  • Frustration with myself - not being able to fully control my mental health
  • Feeling I'm lacking a sense of purpose
  • Using therapeutic techniques, but them not working
  • Wanting to control things, e.g. my own mental health
I explained each of these things, as I wrote them down. A running theme seemed to be wanting to control things. We then went onto another exercise. This time, I would draw a sort of timeline, with the word "Control" in the middle, things that fed into or led to the need for control, along the left hand side of the timeline, and pros and cons of having control, on the right hand side. 

Left Hand Side:
  • My early beliefs about the world, and people. I'd been taught that if I was nice to people, they'd be nice back. If I helped people, they would do the same for me. 
  • When I was bullied, I found that the bullies acted in a way that I didn't expect, so this threw me off. I wasn't prepared for this, so I had no idea how to respond.
  • After a long time being bullied, I began to wonder if I even deserved to feel good and have people being nice to me. After all, these people had been horrible, so surely they wouldn't do that if I didn't deserve it? (Remember, these were my early views, I know the world doesn't work like this now)
  • Because of all this, I began to want to know what would happen next, in situations, conversations, people bullying me etc.
  • I wanted to predict the future, and read people's minds, so I knew how to respond.
  • I felt helpless, weak, useless, like a failure, like I would humiliate myself
  • So in order to fix this, I needed to gain control.
Right Hand Side:

  • Control would lead to reassurance, certainty, feeling strong, knowing how to respond to situations and people. 
As for the negative side to gaining control, this will be discussed in my next session. My counsellor told me that there were only 4 sessions left, so to be aware of that. We discussed what I wanted to do next. I said that counselling is helping me progress, but I need something more intense and specialist in order to focus on and hopefully process properly, the traumatic abortion that I had. I felt I needed some sort of trauma therapy or EMDR. I asked my counsellor what was available. She told me that under this mental health team, the only therapy they offer for trauma is CBT. This is something I've had before, for Depression and Generalised Anxiety Disorder. I didn't find it helpful, so I didn't feel very sure that it would help my trauma either. I told her that I'd give it another go, but only because it was that or nothing, so I'm not sure if I'm in the right frame of mind to be having it at all. 

My only other option is to consider private trauma therapy. I've looked up what's available in my area, and the prices start from around £80 for an hour's session. My only regular income is from ESA and PIP, so there is no way I could afford this, on top of all my other bills. I recently decided to set up a Ko-Fi page, which asks donors to buy "coffees" for the person whose page it is. You click on the amount of "coffees" you want to buy, and that goes directly to the person's Paypal account. I have had one donor so far, who I am so grateful to. I need to raise around £800 though, so I can get enough sessions of trauma therapy. The button that links to my page is on my blog, but I've placed the link again here in case anyone would be kind enough to donate and/or share.


Resources




Wednesday, 26 June 2019

Smear Tests - My Experience

(TW: details of a medical test)

I've been thinking about writing this blog post about my experience having a smear test. It is mostly targeted at people who are having/thinking about having their first test and they're not completely sure what to expect. There's information online about smear tests (aka Cervical Screening), on websites such as the NHS website. These tell you what one is, what it tests for, what will happen, when the results will come through, and what each result means. I do not feel by any means this blog post is something to read instead, but I find personal accounts of these tests can be a good supplement to "official" information. Some of what I say will be similar to the information on websites such as the NHS, but I hope to give more of a personal touch to my account.

(Disclaimer: My experience is by no means a universal one, and I do not want to insinuate that it is. People having a smear test may have very different needs to myself, for example, due to disability. Although I am disabled, my physical difficulties do not prevent me from getting onto the couch, in the examination room, unaided. I also use the term "people" rather than "women" as there are many genders where the person may have a cervix, and I would like to be as inclusive as possible.)

Yesterday was the second time in about 6 years that I have had a smear test/cervical screening. I had finished my period the week before, but was finding that I still had pains particularly round my cervix area. It was not debilitating, but was painful enough that it stopped me in my tracks for a minute or so. Because of this, I was nervous about the test and what it might find. I'm also very self conscious about my body, so was very aware of myself when undressing my bottom half.

I only had to wait a few minutes, before being called through by the nurse. She was someone I had seen (for other reasons) a few times before, so that put me more at ease. She asked me how I'd been recently, so I mentioned the throbbing cervix pain. I found that I played it down a bit (by saying it only happened now and again) possibly due to nerves. She took note of what I said, took me seriously, and was compassionate.

She also asked me some questions about my period ( the approximate date my latest one finished, whether it was regular, how heavy the bleeding was, how bad pains were etc) as well as the contraceptive pill I was on, any side effects etc. I told her I've been on Microgynon for a while, I had no side effects, and on this pill my periods are regular and usually not too heavy. My period pain is bad, but not agonising.

The nurse explained what would happen next. I was asked to undress my bottom half, lie down on the couch, bend my knees up then out; putting the soles of my feet together. I found little difficulty with getting onto the couch, as it was at a comfortable level (around hip level). I told her my hips might sublux in this position, as they are very hypermobile, but thankfully they stayed in place. She then explained what she would do next, before inserting a speculum into my vagina and opening it slowly, in order to gain access to my cervix.

It turned out that my cervix was higher up than normal, so a longer speculum was needed. (but the nurse reassured me this was nothing to worry about). She inserted the longer speculum (after removing the shorter one of course!) before opening it and inserting a thin instrument to take a sample from around my cervix. Due to my concerns about the pain I'd experienced after my period had finished, she took a larger sample than usual. She wanted to ensure that there was enough of a sample for thorough testing, to be on the safe side.

She told me that the outer and inner parts of my vagina did not look red or sore, and she wasn't concerned about them right now, but we'd see how the results are.

I found this second test much less uncomfortable than the first test I'd had. The thing I noticed most was the insertion of the speculum. I could feel the sample being taken, but it was barely uncomfortable at all, only lasted a few seconds, and I felt no pain.

Throughout the test, the nurse checked I was feeling alright, and she explained everything she was doing. I felt very at ease to be honest. The test itself only took about 5 minutes, and the nurse checked I was alright and didn't have any concerns or questions afterwards. I was quite dizzy after standing up from lying down, so I sat down to dress, but other than that, I was ok. She also told me that there may be some light bleeding and/or mild stomach pain later that day. The results of the test will be sent to me in about 4 weeks' time. Lastly, she said that if I had any abnormal heavy bleeding, or severe pain around my stomach, vaginal etc areas, to contact the surgery straight away.

I found my experience of this test, a very positive one, with a considerate nurse. I do hope your test, (whether it's your first one or your 10th one!) goes just as well.

Tuesday, 18 June 2019

"It's a Process" : Counselling Session 7

(TW: Suicide mention, sexual assault details)

I've been extremely depressed this week, to the point of having suicidal thoughts again. Usually, the Sertraline helps calm these thoughts and urges (I'm on the highest dose, so it should be bloody doing something!), but recently, they have managed to break through. I know that there is about a 90% chance I won't actually attempt, but that's because my cat, Billie, is my safety net. He sees me as his mother, and he relies on me all of the time, so I need to be around to take care of him. In that sense, it doesn't matter how much I want to end my life, that option is not available to me.

As well as this, I told my counsellor about what happened at the pharmacy. (You can read about that here , if you want to.)

I told her how the feelings and thoughts, as well as the reactions I had were almost identical to the time I was sexually assaulted at the bus station. It was as if I was having a flashback. I knew that I was in the pharmacy, but I was taken right back to the bus station; having all the alarm-bells-ringing thoughts and feeling like everyone could see what was going on, but no one was doing anything. I felt like I was completely alone and cornered by this strange man. I felt like he could do whatever he wanted to me and I couldn't do anything about it, because I didn't feel strong enough to shout at him etc. All I could do was freeze, or flinch away, and hope the whole thing ended ASAP.

My counsellor wondered whether I could link my reactions etc to the abusive relationship I was in. After some thinking, I said I probably could. The sort of running theme was being connected with a man who felt he had some sort of ownership over my body. The abusive partner was a virgin before he met me, and he basically said that I was obligated to do things for him that he'd never experienced before. As if I was less of a person, and more of an object to fulfil his desires and need to learn about different sexual experiences. When a man treats me in this way, it makes me feel less like a person; as if my identity is either non-existent or doesn't matter to anyone (least of all, him).

I wonder whether my counsellor feels I have PTSD, as I have had traumatic things happen in my life, and the hypervigilance and flashbacks I have are very similar symptoms to what a person with PTSD would have. She asked me to talk more about the hypervigilance and flashbacks too. She seemed interested in learning more about my experiences. In our first session, she did say what I went through sounded like Post Traumatic Stress as well. Whether I pursue the diagnosis or not, I'm just not sure. Unless I can get NHS funded treatment, just having the label doesn't seem that helpful.

We then got onto the topic of identity, and how my mental health and disability blogging and advocacy, had become part of my identity. That isn't a problem in itself, it's just that my online identity, where most of my friends are, only tends to show part of me and my interests. I have occasionally let my friends and followers know about the other interests I have (gaming, cross stitch, singing, keyboard, guitar, flute, metal music, rare nights out, gigs etc) but I don't make them very apparent. I do find myself wondering how well my online friends know me as a whole person. I often see conversations between friends, about their favourite band, film, TV show, game etc and I wonder whether they know mine? I do mention things like Sims 3 (my favourite game), or share posts to do with cute animals or gothic clothing. I told my counsellor that I feel there's a lot to me, just like everyone else, but it's like I've not given myself the opportunity to express other parts of my personality, interests, and hobbies. I worry about losing part of my identity, and I am desperate to grab opportunities to express those parts. Blogging and advocacy are very important to me, but my other interests have their place too. If I spent all my time focusing on the lack of access for disabled people, in many areas of life, and the discrimination faced by people with disabilities, mental health problems etc, I don't think I would ever be happy. Regardless, I still think I don't advocate for my fellow disabled and mentally ill people enough. I want to be stronger, more assertive, more resilient against critical/abusive comments online.

I told my counsellor that I struggled to move forward in life, because of my mental and physical illnesses. I doubt myself, and I struggle to believe in my own abilities and talents. I never say "I play guitar", I say "I play guitar very badly". I still do need to improve my playing a hell of a lot, but I am still able to play, and I shouldn't put a negative spin on things.

I guess that's what Depression and Anxiety particularly do. They make you doubt yourself as a person, as well as the things you do. They enhance your perception of your faults, and minimise your perception of your abilities. It's very hard to fight against all the negative thoughts that tell you that you're failing, or not being good enough.

I'm so fed up of myself and my situation, and I want to do everything in my control to improve.

I asked my counsellor how I could move forward. I told her I was stuck, analysing my problems to a certain degree but not knowing what to do next. I told her what I tended to do in therapy, counselling etc is give the therapist as much information about me as possible, in the hopes they can take that, analyse it, and tell me what steps I need to take to feel better. My counsellor and I agreed that it's not as simple as that. She said that if she did that, and the steps I took didn't work, I'd never be able to trust her again, and the therapeutic relationship would break down.

She told me that therapy/counselling is a process. Throughout the sessions we do what we can to recognise my problems, link them to other things that've happened in my life, make connections, and then hopefully I will go away and think about these things, then come up with ideas for ways I feel ready to move forward. In a nutshell, the counsellor can't give me all the answers and steps to take, all she can do is help me to help myself.

I think these counselling sessions are making me think about the whole process in a different way. I know I'm still searching for answers, but I can't expect the counsellor/therapist/CPN/whoever to find them for me. I need to be patient with myself, and focus on my progress as well as my struggles. I can only be guided.

I'm still not entirely sure how to move forward (apart from joining a choir, or other class relevant to my interests) but I'm gathering information about myself, with the help of my counsellor. I did feel a little better when I came out of my counselling session though. I may not be able to completely control my health, but maybe I can shift my focus or include my interests a bit more, in order to improve my quality of life? I think my counsellor wants me to live in the moment, rather than worrying about the future (whether I'll get married, have children, work again etc) all the time.

My next session is in a couple of weeks, but I will try to write a different post in the meantime, so watch this space!

(I've also set up a Ko-fi page, as I'm needing money for disability based things. One big thing I need is private trauma therapy. If you like my writing and want to read more, please consider donating and I will try to write more often)

Resources

Counselling Session 6: https://www.amysmysteryillness.co.uk/2019/06/judgement-and-entitlement-counselling.html

Symptoms of PTSD:  https://www.mind.org.uk/information-support/types-of-mental-health-problems/post-traumatic-stress-disorder-ptsd/symptoms-of-ptsd/#.XQgaQLxKiM8

Amy's Ko-fi page ko-fi.com/amysmysill