Tuesday, 23 October 2018

New/Worsening Symptoms

I thought I'd write another quick updates post as, for the past 2 or 3 months, I've been having some suddenly worsening symptoms. My fatigue has been very bad (to the point where it's taking all my effort just to stay awake) and I've been having a lot of dizziness when sitting up or standing for a while.

I'm also finding that I crave salt, and after eating carbs, my dizziness worsens. I keep getting feelings that I'm going to faint too, but I've only ever fainted once in my life (about 5 years ago).

Other things that make my dizziness worse are:


  • overheating
  • turning my head
  • overexertion
  • pain
I've seen the doctor twice about this, have had blood tests (all normal) and an ECG (normal). My GP has referred me for physio (as she thinks I may have a neck problem) and to an ENT specialist to see if my hearing is affecting this. 

I did ask if my symptoms could be caused by a condition called Postural Orthostatic Tachycardia Syndrome (POTS) and the GP said she doesn't think so, because my ECG was clear, but she will refer me to a Cardiologist (who will assess me for this amongst other things) if ENT and physio can't help much. 

I have my first Physio session next month, but I'm still waiting for my ENT referral letter. I'll update my blog accordingly.

UPDATE: My referral came through! On 21st December I have an appointment at Russells Hall Hospital in the ENT- Neurotology department. I'll write a new blog post when I start physio and then when I have my first ENT appointment. Please comment below if you've been referred to a similar department for dizziness. How did it go? What tests did they do?

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