I'm a spoonie (Google "The Spoon Theory") from the UK with a keen interest in mental health, intersectional feminism, and disability activism. I have the following diagnoses:
Fibromyalgia
Joint Hypermobility Syndrome
Irritable Bowel Syndrome
Overactive Bladder Syndrome
Borderline Personality Disorder
Generalised Anxiety Disorder
Agoraphobia
Social Anxiety
Obsessive Compulsive Disorder
Phew, that is a lot! Some of these occurred because of other illnesses in the list, but I prefer to put them separately so you know what kind of things I talk about in this blog.
I originally started this blog as a sort of online journal. I was undiagnosed at the time (hence the blog's name!) and had been put on a gluten free diet by my GP. I used this blog to talk about my experiences with chronic illness, my symptoms, misdiagnoses, treatment, experiences claiming benefits etc. As I got more views and got the Fibromyalgia diagnosis, I connected with people who had similar symptoms; many of whom were disability activists. I learnt so much from them and do my best to keep up to date with news about research trials, welfare "reforms" and general attitudes towards disability/specific conditions. I still write about my own experiences, but I also write about new developments with benefits, mental health stigma, disability/chronic illness stigma. You may find the odd review of disability-related products here too!
If you find my posts interesting or even helpful, please subscribe!
Amy xxx
I am gutted I have only just found your site! It reads just like my life... it's refreshing to know someone else is going through very much the same as myself - the physical, mental exhaustion and trials and tribulations of chronic illness life. I can't wait to read more x x
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