I'm finally going to my doctors' to get a second opinion on the hypermobility. So far, I've been to my GP about my dislocating/partially dislocating left knee (See My Weird Knee post) and she suggested hypermobility. I went again, to show her I had multiple hypermobile joints, my knee was not getting any better and I found places like my shoulders and hips were also partially dislocating. I was getting pain in these joints and I wanted to be referred to see if I could possibly have EDS Hypermobility type. She straightaway said that, unless this condition ran in my family, there was absolutely no way that I could have it.
I want to come to the doctors with more information, as well as pictures of my hypermobile joints. I've included these pictures below; alongside some pictures of unexplained stretchmarks round my knees.
The Beighton's score is used to test flexibility in certain joints. The Brighton criteria (including the Beighton's score) helps to diagnose Joint Hypermobility Syndrome though. (source: http://www.arthritisresearchuk.org/arthritis-information/conditions/joint-hypermobility/diagnosis.aspx)
It's not part of the Beighton score, but my spine looks fairly curved in the lower back area. This is where I have the worst pain too.
These last 3 pictures show the strange markings on my thighs and near my knees. I have some faint scars (they didn't show up in the photos) and I think the above may be stretchmarks. The top one is the most impressive!
Ok, so I need to go over the signs and symptoms of JHS/EDS to show the doctor tomorrow. I may edit this post to say why I think I might fit the criteria. Any tips or anything, feel free to comment!
*Sigh* still no luck. This doctor did actually check my joints but decided that I didn't get enough points as some of them weren't quite hypermobile enough. She reckons it is my kneecap that dislocates rather than the joint itself, and my shoulders have more of a bad subluxation than an actual dislocation (even though I have to pop them back in). I just don't know! She's the doctor, so there's only so much I can argue; not having medical qualifications/experience myself. Maybe I just won't be taken seriously until I have a dislocation that I can't pop back myself? I was hoping this would be investigated before that happens (I really don't want it to!)
Thank you for all the advice :)